What is a BAD BRAIN DAY?

Over the last ten years since I began having trouble with my brain, and having bad brain days, many people have asked the question, “what is a bad brain day?”  I will do my best to answer.

From all of our research ( M and myself) and from listening to and speaking to other people with a brain injury, the list of symptoms is quite broad.  Everyone’s brain is a bit different, and the way each brain responds to injury also differs.  I will stick to the symptoms that affect me.  If there are brain injured people reading this, some of the symptoms will be familiar and some may not.

Bad brain day problems for me can range through the following.

Major headache, dizziness, nausea, confusion, inability to speak, weakness in the hands, tingling in the hands, tingling in the mouth and tongue, light sensitivity, noise sensitivity, irrational anger, lack of motivation, lack of coordination, partial seizures, and frustration.

Most times, I can control these things by taking care of myself.  What does that mean?  It means getting enough sleep including napping, exercising, and paying attention to how I am feeling in general.

For instance, today I had to drive to Boulder by myself.  Normally M would have gone with me and probably driven so I didn’t have to stress about the drive.  I made it to Boulder and back home again with no isssues which is a big accomplishment for me.  However, walking home after picking up M at work, I began to feel myself fading.  My head began to tighten, my mouth started to feel different and my hands began to feel weak.  For once, I did the right thing and told M right away and we both cut back on the chatter since talking more can make me worse.  By the time we got home I couldn’t speak without great effort, and I was very hungry.  This time I was able to make myself some food which usually helps at least a little.  It was also time for M’s run,  so she left and I didn’t feel the need to speak as I normally would.  I did what I usually do when this happens and sat down to read.  Some people have asked why I don’t watch tv or play video games during these times and its because those things can make me very nauseous.

How do M and I keep track of or determine how I am doing?  Although its now unspoken, we generally think of my brain having a brain bank.  Everything I do causes money to come out of the brain bank.  If I spend too much, just like in real life there are consequences.  In order to not overspend from the brain bank, we try to limit my daily living to the bare minimum of work, exercise, eating and sleeping.  We do not go out much because there are lots of extraneous things for my brain to process at places like restaurants and movie theaters.  When there is something extra required, like today’s trip to Boulder, we plan ahead and make sure I get plenty of rest beforehand, take plenty of snacks and cut out any thing else we can think of so I can be as prepared as possible.

All that may make it seem that we live a boring life and there is some truth to that thought.  We tend to see it as a simple life and we make every effort to enjoy this life as hopefully seen in our traveling and running.

How do we travel with all the baggage I naturally bring along (pun intended)?  It’s really a question of logistics.  In other words, M handles all the logistics.  I just go along and make sure she can speak English correctly to the customs people after the overnight flight.

 

12/03/17 – First Quandary Attempt

M and I decided that today was the day to make our first summit attempt on Summit County’s only 14er, Mt. Quandary.  A friend had made the summit yesterday and today’s weather forecast looked promising with sunny skies for the morning.

We are fairly certain that M and I are the only remaining semi-athletic people in Summit County who have not summited Mt. Quandary.  Since neither M or I have been training very hard the last month or so, we decided to make this a hike rather than a run.  However any hill M sees causes her to speed up so the hike was not slow.  The fastest known time from the parking lot to the peak is around 51 minutes by Colorado Springs based mountain runner Joe Gray.  M and I would not be approaching his time today, or ever for that matter, but its an interesting thing to know ahead of time.

Despite our lack of serious training of late, we both felt physically prepared to make the summit.  What we were not prepared for was the 100 m.p.h. winds.  At the one mile to go mark we were both blown sideways by the wind.  That part of the trail is on a wide ridge so there was not much danger of getting blown off the mountain.  The next part of the trail however is a very steep and very narrow ridge that goes right up to the summit.  Neither one of us wanted to risk dying simply to get to the top so we turned around and headed back down the trail.

We learned some things today that will benefit us during future attempts. We were both well prepared with adequate food and water.  Our microspikes on our shoes were a huge help as the trail was very icy most of the way.  I was not as prepared as I should have been for the winds as I had not brought a wind-proof jacket.  I also wished for something to cover my face because the wind combined with the cold was starting to burn my cheeks a bit.  Some slightly warmer mittens would also have been nice.

We considered today’s attempt quite the big adventure for us, and we both look forward to trying again soon.

M’s picture of me at our turn-around point on Quandary
A picture of almost the summit of Quandary
M selfie

8/20/17 – TRR Stage 6!

We made it! Stage 6 was 22 or so miles and about 4,400 feet of climbing. For the week we did 124 miles and 20,000+ feet of climbing! For now I’ll just say it was quite the experience, and we are both thankful that we were able to do it.

WE WILL NOT BE DOING ANYTHING LIKE THAT AGAIN ANYTIME SOON! It was very hard and we are glad to be done.

We finished 2nd in our category each day and 2nd overall in our category for the whole race. Meaning we now have lots of medals as we got a new one each day.

I will use this opportunity to remind you all that you can always do more than you think you can! Hopefully I’ll see some of you tomorrow.

Reporting from home, me

8/19/17 – Day 5

We made it through day 5! Today’s stage took us from Red Cliff to Vail.

The first part of the stage was on a backcountry dirt road. After 8 miles we finally made it to some of the best single track trails we have ever run on. These trails are essentially way in the back of Vail ski area.

The most perfect trails through the forest
More amazing trails

At about mile 14 we made it to the back bowls of Vail. It was really cool to see the area without snow. It’s quite beautiful with tons of wild flowers.

After a bit of running on the ski area access road across the top of Vail we began a long descent down to Vail Village. 24 miles after we started we were finally done and glad of it.

Tonight we are roughing it in a tent on the Ford athletic fields. We have discovered that we are really soft when it comes to camping and that we definitely prefer to sleep indoors. One stage to go.

Reporting from a tent in Vail, Colorado, your tired trainer.

Looking back towards Mt of the Holy Cross
Beautiful views as we approach Vail’s back bowls
Time for another selfie!

8/18/17 – TRR Stage 4

We made it another day! Today’s stage was on the shorter side at 14 miles and most of the climbing was in the first 6 miles.

We left from Nova Guides and headed out on gravel roads for about 2 miles before beginning the day’s big climb.

The hardest part of the climb was near the top where one segment of the climb gained a bit over 700 feet in 0.7 miles. It was the steepest climb we have done thus far.

The top with beautiful views

After clearing the top we had a bit of flat followed by a long downhill. Near the end of this downhill trail, about the last mile or so, the trail runs through a creek that is flowing rapidly down the hill.

There is no way to avoid getting wet so one just has to get down the creek section as best one can with frozen wet feet. The cold water was nice for about 2 minutes before feet were frozen and numb.

We finished strong into Red Cliff and were looking forward to getting back to the cabin.

Reporting from said cabin, me.

8/17/17 – TRR Stage 3!

Good afternoon all. Today I am writing from a most beautiful cabin at Nova Guides somewhere past Red Cliff, Colorado. Technically I think we are in Camp Hale, which as some of you will know, is where the famed 10th Mountain division of the US Army originally trained for high alpine activities during WWII. It certainly is a pretty spot to train for war.

There are still some old ammo depots and bunker type places lying around the area, but they are more of an interesting attraction than distraction.

Our run today started in a very cold Leadville. If you’d happened to have been driving through Leadville this morning you would have seen all of us runners running along Main Street and out to the highway that leads to Tennessee Pass.

Eventually we turned onto a jeep road and began the biggest climb of the day. It wasn’t too bad, but it certainly got the heart pumping. After about 5 miles we began a descent to mile 8 on more jeep roads.

After some running along a disused paved road we turned onto another jeep road and began another climb. This climb was not particularly steep, but it was a little long. The climb led us to the ski resort called Ski Cooper (no relation to Copper Mountain, much to some tourists’ dismay).

We made a brief stop at the aid station located at Ski Cooper and headed out to finish the last 10 miles of the stage. It was at this point that M pulled out her phone to take pictures as the views were nice. Discovering that her phone was turned off, M turned it on to find that rarest of backcountry beasts, cell service. She also discovered a text message response from the world’s greatest crew chief, sister Sarah! Sarah was responding to M’s earlier request for Larkburger for dinner.

M immediately called Sarah and confirmed that yes, we would like a delivery of burgers and fries for dinner this evening!

After this positive update, our pace picked up a bit because we knew that not only would we be staying in a warm cabin, but we would also be having an awesome dinner.

The last part of the stage was mostly single track with some rolling hills. The trails in this section were very nice trails running through a lovely forest.

After a 3 mile gravel road finish, we were finally done with the day’s 24 miles.

Fortunately we were able to check into our cabin earlier than expected. It was quite a luxury to take a shower in our own bathroom.

Of course it was even nicer when Sarah showed up with our Larkburger order! We had a great dinner with Sarah and we can’t thank her enough for the help she’s given us these last 2 races.

Hoping you all are well and reporting from a cabin nicer than our house, me.

8/16/17 – Hope Pass

We made it again today. As I said yesterday, today’s run was much more our style. We started in Vicksburg and had about 2 miles of flat, dirt road before beginning the climb up Hope Pass. There were about 3 miles of steep uphill and then around 4-5 miles of downhill. The route finished with a few miles of rolling terrain. Our total for the day was around 13 miles.

We made it to the top!

Hope Pass was beautiful and reminded M and I both more of a European climb than a Colorado climb because of the steepness. It was quite cold at the top so we didn’t linger long before making our way down to the finish at Twin Lakes.

Reporting from a tent in Leadville…

8/15/17 – TRR Day 1

These emails will probably be few and far between due to lack of interweb and the fatigue of the author. Here is a brief update on our first day.

Stage 1 of 6 began in Buena Vista. We ran on a combination of fire roads, dirt roads and single track trail. The weather could not have been better as there were blue skies and the temperature was at most about 70 degrees. The stage was 21 miles long with not much climbing.

M and I both ran well and felt good at the end of the stage.

Tomorrow’s stage is a little more to our liking as it simply goes straight up Hope Pass and then down the other side and is only about 14 miles long. We start in an old mining town called Vicksburg and finish around the Twin Lakes area just outside Leadville.

Reporting from a small cabin in the Arrowhead Point Campground, this is your trainer saying, “Goodnight”.

7/9/17 – The Race Update

Going in to the Grand Traversée, M and I expected a tough race and still we got a little more than we bargained for.

As usual I lost contact with M within the first 5 minutes. As it turned out, a lot of people lost contact with M. At one point she was 87th overall and in the top 5 women. There were 570 people in the race. I was doing well and wishing the crowds would thin out a bit so I could make a steady rhythm instead of having to use so much energy passing people.

Some beautiful alphorn music at about mile 3
Almost at the top of the first climb

We got a big surprise after completing the first two climbs when we got to what was expected to be a runnable downhill. Instead of being runnable it was the most difficult and technical downhill of the day. Technical downhills would be a theme throughout the day.

From about mile 13-16, I slowed considerably and was the closest I’ve ever been to dropping from a race. I felt horrible and had to hike those three miles of downhill which should have been an opportunity to gain some easy time.

I made it to the next aid station and refueled and somehow got myself going again. By mile 18 I was feeling quite a bit better. I knew that I only had two climbs left till the finish. One from mile 17-24 and the other from mile 32-35. They were both huge climbs but as I had been feeling well on the climbs all day I thought I could make it.

I made it to the mile 24 aid station and again refilled my hydration bladder and other food supplies. As I was on my way down another technical downhill I got an update from M who was at the aid station at Lourtier, at the bottom of the last climb about 5 miles ahead of me. Her time was incredible and was looking to be well ahead of where we thought she’d finish.

I was feeling good and running quite well for most of the section down to the Lourtier aid station, but by the time I got there I was ready for some uphill. The downhill is so hard on your toes! Of course the last uphill was the biggest of the day with 4,000 feet of gain in 3.5 miles! I don’t have any pictures of it because it was getting dark and I was tired.

But here is a picture M took on the last climb

I had a communication from M to take the last climb really slowly because it was so hard, so that is what I set out to do. Most of the climb was so steep you could put your arm straight out in front of you and be touching the section of trail you were going to next.

After cruising relatively quickly (if you can consider 38 minutes per mile quick) up the first 3/4 of the climb I was beset by cramps in my legs. I had to slow considerably but slowing down enabled me to manage the cramps well.

I finally made it to the last aid station at La Chaux thinking M was already finished with the race. As it turned out she had had stomach problems and had only left about 40 minutes before I arrived. I refueled again and set out with my headlight on as it was almost 10 pm.

The last descent in to Verbier was yet another steep technical descent only this time with the added bonus of darkness! M and I had planned to do some night runs before this race in order to practice running with our headlamps, but it didn’t work out so we were in uncharted territory.

The course is well marked with reflective red and white markers so it wasn’t all that difficult to follow. Just not falling off the edge of the trail or tripping over a rock or root was the hard part. Not to mention that by this time our legs were destroyed.

M made her way down and finished in an incredible 11:58! She was the 24th woman overall and 86th overall for men and women combined.

I trudged down to finish in 12:44. I was 228 overall out of 570.

As it turned out, one of the best Ultra runners in the world, a Frenchman by the name of Francois De’Haene, won our race in just over 7 hours.

The race turned out to be about 39 miles with 13,700 feet of gain.

It was even harder than we thought it would be and also more picturesque than we’d imagined.

We are now looking forward to a few days of no running and letting our bodies heal from the beating we took!

7/7/17 – Fires

Hopefully you all are well and haven’t had too much smoke inhalation.

We have been getting notices of the fire and are hopeful it will be under control soon. The area that is burning is where we did our last big run before going on vacation. It sounds as though it’s now mostly ash and soot which is most unfortunate as that is an excellent trail area.

We are resting hard today in preparation for tomorrow’s big race. We will let you know how we did on Sunday. Stay safe.

Told you our street was a bit steep!
Headed down the gondola to Le Châble
Glaciers
And we thought the courses at home were hilly. This par 3 course is on a ski slope!